Patient-Reported Outcome Measures are questionnaires measuring outcomes of importance to patients including quality of life, health status, treatment satisfaction and well-being. HPR PROMs are mostly condition-specific questionnaires. This means our PROMs are designed for patients with a specific medical condition. As a result, they are shorter, more responsive to within group differences, and more sensitive to change than generic measures that attempt to be relevant across very different conditions.
HPR has three main activities:
1) Developing condition-specific PROMs to measure psychological outcomes like quality of life and treatment satisfaction.
2) Promoting best use of these questionnaires through our ongoing research and licensing process.
3) Making new language versions available using a rigorous linguistic validation procedure.
By using a licensed questionnaire, you can be assured that you are using the most recent version that is appropriate for your study. As part of the licensing process, we will ask you to share a study protocol with us so we can advise how best to use the questionnaire in your study. If you use a questionnaire from a third party (e.g. a colleague, a website), then you may be using one that has unauthorised modifications. These can damage the tool’s psychometric properties, which can render any data derived from their use unreliable. Journal editors, health technology assessors and other third parties may also want to know that a licensed questionnaire has been used.
When funding is available, a new language or adaptation of an existing language can be done by a specialist translation company. Otherwise, researchers may have the option to produce translations for their own use if they have the resources to follow the LV process we require. Such translation will have to be done in close collaboration with the LV team at HPR to ensure that other language versions being produced maintain their equivalence to the original English version. You can read more about the LV process and contact us to discuss potential LV projects.
Yes, although you will need to use a third-party platform and electronic migration of the questionnaire is usually required. Prior to starting your study, you will need to make the electronic version you create available to HPR for an adaptation review. This ensures that all essential parts of the questionnaire are retained in the electronic adaptation. Please read our electronic migration guidelines for further information.
Some questionnaires, such as the change versions of some treatment satisfaction questionnaires, may need study-specific instructions in some special cases. If this is the type of modification you have in mind, then HPR will work with you to generate instructions that are suitable for your needs. Please do not modify a questionnaire that has been licensed for your study. This may have unintended effects that complicate interpretation of any data you generate (e.g., by undermining the validity of the questionnaire), and will invalidate the licence.